Mother Talkers

End of Life Issues

Tue May 06, 2008 at 05:50:07 AM PDT

The New York Times ran a story about "slow medicine," the practice of medicine focused on comfort rather than a cure. In this case, reporter Jane Gross focused on seniors who decided resuscitation, surgery and other drastic measures were not worth the pain and discomfort at the end of their life.

The term slow medicine was coined by Dr. Dennis McCullough, a Dartmouth geriatrician, Kendal’s founding medical director and author of “My Mother, Your Mother: Embracing Slow Medicine, the Compassionate Approach to Caring for Your Aging Loved One.”

Among the hard truths, he said, is that 9 of 10 people who live into their 80s will wind up unable to take care of themselves, either because of frailty or dementia. “Everyone thinks they’ll be the lucky one, but we can’t go along with that myth,” Dr. McCullough said.

Ms. Sandberg-Cook agrees. “If you’re never again going to live independently or face an indeterminate period in a disabled state, you may have to reorganize your thinking,” she said. “You need to understand what you face, what you most want to avoid and what you most want to happen.”

Kendal begins by asking newcomers whether they want to be resuscitated or go to the hospital and under what circumstances. “They give me an amazingly puzzled look, like ‘Why wouldn’t I?’ “ said Brenda Jordan, Kendal’s second nurse practitioner.

She replies with CPR survival statistics: A 2002 study, published in the journal Heart, found that fewer than 2 percent of people in their 80s and 90s who had been resuscitated for cardiac arrest at home lived for one month. “They about fall out of their chairs when they find out the extent to which we’ll go to let people choose,” Ms. Jordan said.

Of course, the decision to seek or decline care is a personal one. But it is something we will all have to face at some point -- not just the elderly. (Don't forget to write your wills!)

But as the article pointed out, there is a quiet etiquette being broken in even talking about it. Doctors are supposed to do everything possible to save a patient whether they are 10 or 100. But oftentimes, patients are never told of the actual physical discomforts and financial costs in receiving surgery, for example, near the end of life. What do you think? Should more doctors broach this sensitive topic?

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Tags: end of life, elderly, slow medicine (all tags)

Permalink | 8 comments

  • Yes, sort-of (0 / 0)

    I believe patients and families deserve to know all of their options in order to form health care decisions appropriate for them.  Unfortunately, I don't believe it is the doctors that need to do it.  Many doctors seem uncomfortable with not treating a patient.  As a nursing student, I helped a patient and her family  understand the options.  I think the doctors are trained to help save lives, and allowing someone to die goes against years of training.  I do think that the social workers in many nursing homes are under-trained for this sort of thing, you almost need a law and a medical degree to understand all of the language in the paperwork.  

    • It is so important to have a plan in place (0 / 0)

      I have a great aunt who has bone cancer, she has no will, no directives, no medical POA, no nothing. Her brother (my elderyl grandfather) is trying so hard to help her, but even making what should be simple decisions is complicated by the fact that she is both ill AND depressed. She needs to be in a full-care facilty and she is very much day by day on whether she will go or not.
    • big gap in care.. (0 / 0)

      my parents have written health instructions stating no rescusitation orders.  additionally they have nominated a person in the family to handle the decision to be sure it is carried out in the way they intended.

      my parents are well informed and made these decisions on their own.  the question becomes WHO informs elderly folks who are not well informed?  ideally this should be a discussion/decision before you get sick. we  have had these kinds of discussion with my parents along with raising issues around writing of their wills.  for example, i encouraged both my parents to nominate an outside person to be executors of their will rather than me or one of my siblings. w/r/t to health, my mother has given me detailed instructions regarding end of life so there will be no doubt of what she wanted.

      it is truly a shame that docs make this decision.  awareness of this issue will help.

  • asdf (0 / 0)

    Doctors are supposed to do everything possible to save a patient whether they are 10 or 100.

    Doctors are discussing this very issue in terms of a pandemic. This article talks about who they will help/save in the event of a vast reduction in staff, resources, and space. It opens up some very interesting, and ethical, issues that Americans really don't like to talk/think about.

    Insofar as "slow medicine" is concerned, I think education is key: family members need to find out the physical and financial discomforts, recovery and rehabilitation realities, etc. and help older folks make sound, informed decisions. Much easier said than done, however.

    • and hard to raise with your folks... (0 / 0)

      it isn't easy to talk to your parents about wills and how they want their health decisions around end of life.  it was easy for me as both my parents raised it themselves.  one way the discussion perhaps to approach is discussing end of life experiences for one of their friends or a family member.
      • Having parents that (0 / 0)

        talk about these things is the best.  One of the best gifts my late mother in law gave my husband and I was discussing with us, for years, what she wanted done when the time came.  She'd just casually bring these things up.  She left  a living will outlining her wishes officially.

      • absolutely (0 / 0)

        I'm really fortunate that my folks have been pragmatic about this and have left detailed instructions and orally told my sister and I what they expect. Since my dad's father had Alzheimer's, they have also included instructions should that happen.

        DH and I have also talked about what we expect for ourselves as well. I think we need to write explicit instructions as well, now that I think about it.

  • My parents were very open about their wishes. (0 / 0)

    Because my Mom had been diagnosed with cancer, I think my parents were prompted to get their affairs in order.  Then my Dad also was diagnosed with cancer about a year into my Mom's treatments so we were very stressed with all the care for both of them.  It was extremely fortunate that we had a pretty good sense of exactly how they wanted their medical, financial, and other details handled.

    When my Mom was at the end of her life, our family (with her included) sat together and discussed plans for her memorial and other concerns.  My Mom chose the music for her service and wanted 12 honorary pall bearers, all her women friends whose function was to greet and seat people at the service.  After she died, and perhaps even as much as a year later, it occurred to me how unusual it was that we were able as a family to be so level-headed in such an extreme circumstance.   I am really grateful for that.  

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