Mother Talkers

Finding a doctor

Sat Apr 05, 2008 at 09:35:12 AM PDT

O Resourceful Mothertalkers, I need your expertise!

We are in need of a neurosurgeon for DH.  He has some significant problems throughout his spine but the main focus at the moment is way up in the cervical spine -- C3, C4 area.  He should probably have surgery within the month.  So the question:  How to find the best doctor?

We live in the Los Angeles area.  We have USC and UCLA near at hand, and they both have great websites.  We are getting referrals from friends and family.  But is there a more systematic way to feel like you're finding the doctor who really knows what she is doing?

I know some of you work in healthcare.  What are the secrets of finding the good doctors?  Are there websites or magazines you would consult?  What strategies have you used to locate the best doctor when you needed one?  

And, Does anyone know of a great neurosurgeon????

Tags: doctor, surgery, neurosurgeon (all tags)

Permalink | 22 comments

  • I would probably look up support (0 / 0)

    groups in your area that are there to help people dealing with spinal issues and contact them.    Such groups usually have a good feel about who's worth seeing and who's a waste of your time.  

    I know I'm not telling you anything you don't already know, but decide what it is you're looking for in a doctor...what's most important?  Does "bedside manner" matter a lot?  Do you want someone with a prestigious reputation who publishes, or are you content with someone with a good reputation who's competent?  Someone who'll have all the answers, or someone willing to work with you to find them?  

    • we want someone (0 / 0)

      who will partner with us in planning for what looks like it might be a series of surgeries / interventions.  So someone who can think sequentially.  And also an excellent surgeon, who will make the pain stop and not create any new problems.  Bedside manner would be icing on the cake, IMO!

      Thanks for your ideas, I will see if I can locate some support groups.  You are right, those are people who would know a lot.

  • No great advice here (0 / 0)

    but lots of best wishes and good luck.

    I have found fabulous doctors in a variety of ways, and have been referred to doctors by close friends and found I didn't like them at all.

    When I needed a surgeon for a breast biopsy several years ago, I called the doctor my OB/GYN recommended and she could not see me for over a month. But her office staff recommended two other people and one of them turned out to be one of the best doctors I have ever seen. I am not wild about my family practice doctor [bedside manner leaves a lot to be desired] but she recommended me to a GYN surgeon (for my hysterectomy) whom I adored. My OB who delivered my kids -- I found her off a doctor finder service of the hospital she's affiliated with, and loved, loved, loved her.

    I would ask everyone I know -- doctors, friends, do internet searching -- and then go with your gut.

    again -- good luck!

  • docs (0 / 0)

    For a surgeon, I think the most important thing is how many times they have done that exact surgery.  That's what I would ask about.  

    I had a orthopedic surgery, and I went to one doc for a consult, but he did everything, shoulders, knees, etc.  He was also a huge ass during the visit, but that's besides the point.

    Then I went to a second guy, and all he did in his practice was was the particular joint I needed repaired, 1000s of times, and he was a professor at Columbia.  He did an awesome job and was kind to boot.  I appreciated his kindness, but for a surgeon, competence is most important.

    Good luck with finding one.

    • Couldn't agree more (0 / 0)

      The most important question is how many times has the surgeon performed the specific surgery you need.  Bedside manner is nice, but surgical experience is what matters.  Give me an arrogant surgeon with lots of experience over a pleasant novice any day.  

    • good to keep in mind (0 / 0)

      When we get a good list of people together we will interview a couple and will definitely ask about their numbers.  

      I'm glad yours worked out well.

  • Who would the doctor see? (0 / 0)

    It's not always the same person s/he refers you to. Doctors have to take a lot of patient factors and business relationships into account when they make referrals. They might not refer you to that really great surgeon who's 150 miles away in an out-of-network hospital. So ask where the doctor him/herself would go, regardless of all the other factors.

    Also, if your DH has had imaging that was read by a fellowship-trained neuroradiologist (his primary referring doc will know), you might want to track down that doctor and ask the same question. The radiologist's name/practice will be on the dictated imaging report. [Full disclosure: This is my DH's specialty, so I'm biased in making this recommendation. Feel free to ignore me, as I am in the pockets of Big Neuro.]

    I agree with the posters who say that it's important to find a surgeon who has done an appropriate number of the procedure your DH needs, but I will add a caveat. If the procedure is new or uncommon, there might not be anyone who's done it 1000s or even 100s of times. You might be lucky to find someone who has done it 25 times--that might be the expert! So be sure you are interpreting the #s in context.

    (Oh, as for magazines, their 'awards' often are tied up with advertiser relationships. Sad, but true.)

    • ah, good idea! (0 / 0)

      DH has the radiologist's name on his films so he said he will track him down and ask his opinion.  Thank you for that idea.

    • sangfroid (0 / 0)

      Does your husband know a Dr. Petrus in Pasadena?  He is the one who read the films. DH contacted him for a referral.  Unfortunately the guy he recommended (who we've heard of from others) isn't available to meet until the 23rd.  It's starting to look like we need something right away.  We have an appt. today and another one Friday to interview surgeons.

      If your DH knows of anyone at USC, UCLA or around SoCal that he would recommend, I'd love to get names.

      Thanks.

      • We're in the Midwest (0 / 0)

        Unfortunately, that's out of DH's turf. The only people we know in CA are some artist/writer friends, and they suck at neurosurgery. ;) Seriously though, I'm sorry the recommendations aren't matching up with your timeline.

        You might have already tried these, but here's a couple of tricks that might help you get into the doc of your choice (provided he's not out of town or something). First, don't make your own appointments; have DH's primary doc make the appointments for you. Specialists often set aside appointments for urgent cases that are directly referred by doctors. If your doc's office calls and says "you know, this guy needs to get in asap," it could help. I would recommend talking directly with DH's doctor to make this request, so it's not treated like an ordinary referral.

        Also, the surgeon that you want to see might have a wait list or might be amenable to you calling each day to check for cancellations.

        I wish I had more specific information for you. I am hoping for the best!

  • Second opinons are good (0 / 0)

    I'd make sure to get several opinions before doing any surgery.  I'd ask numbers -- numbers of surgeries performed, outcomes, etc.  As a former nurse I really respect teaching hospitals and use them for my family's care.  Surgeons who teach at a medical school are often good, imo, and you can look to see if someone is tenured, associate, etc.  I like to look at how long people have been practicing, where they were trained and so forth as well.

    Oh - I'd also look to see if the hospital where your husband will recover is a nursing magnet hospital.  It doesn't mean everything, but it is a sign of stronger nursing care which is an integral part of post-op recovery.

    Best of luck in your search and healing thoughts to your family...

    • ITA (0 / 0)

      Never hesitate to get a second (or third or fourth) opinion. Talking with another doctor can lead you to new options or give you a sense of confirmation that you are taking the right course.

    • thanks Anu (0 / 0)

      I hadn't even heard of nursing magnet hospitals, I will look into that.  And I will think again about UCLA, which is a teaching hospital.  

      I hope you are spending more time out of the hospital yourself?  Best thoughts to you and yours :)

      • Thanks :-) (0 / 0)

        We've graduated to the cardiac floor, as opposed to the ICU, so we feel pretty lucky.  I'm realizing just how lucky we are to have what we do: insurance, some financial security, social support.  It's just plain awful that others do not.

        • happy graduation (0 / 0)

          has your son beaten the RSV?

          • Not quite yet (0 / 0)

            He's still needing some extra help with suctioning, oxygen and pulmonary therapy but the virus itself is gone.  He's also post-op, which complicates things a bit...  Now that he's on the floor I'll stay here during the day and my husband will stay here at night.  It feels good to be here but it'll be even better to be home.  We still aren't completely sure what the long term 'stuff' is yet, but we should know more in the next week...

            • glad the virus is gone (0 / 0)

              hope the "clean up" goes swiftly and uneventfully. I'll be thinking of you guys a lot and hoping for best possible scenarios with the discussion of the long term stuff.

              Big hugs from here.

  • Mamacita (0 / 0)

    that just stinks, needing a neurosurgeon.  It seems like your family gets just too many medical challenges.  {{{hugs}}}

    I don't know how to choose a doctor, since I think it's hard to get an accurate sense of their medical record.  But I think there's a possibility you can weed some out by calling the health department and seeing if there are complaints against them?  

    I don't know much, it's just a guess.

    • thanks sweetie (0 / 0)

      We'll get through this one, just like the others :)  

      That's a good idea, to make sure there are no complaints.  I'll check into that.  Fortunately I think you can do some of that online these days.

  • asdf (0 / 0)

    I don't have anything to add to the great advice above, just thinking about you and your husband. I know you'll be able to find a great doctor.

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