Mother Talkers

My Mom Has Cancer-Updated

Tue Apr 22, 2008 at 05:30:49 AM PDT

My mom has cancer.  Ovarian.  Surgery later today will tell us how widespread.  I suppose that surgery today will tell us how much hope we should hang on to.  She's been having horrible sharp pains for months, but I don't think she went to the doctor about it.  She hates going to doctors.  Recently, she's been more tired and sick than usual, but she thought it was the flu. Friday night she was fine ...

she and my father had dinner at our house.  We had a stupid fight,   as we are  known to do.  (I was irritated that she told my DS he "has to play more gently with girls").  I am devastated that I was agitated with her.
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                Sunday night DH got a call from my Dad while we were in birthing class.  Mom was in the hospital.  It has been hellish since then.  I never imagined I would see my mother, the caregiver, like this.

Right now, it is just wait and see.  I suppose after the surgery it will be either a) chemo and see how it goes or b) hospice care.  Neither one is appealing.  We think that the cancer is fairly widespread.  We know it has reached her liver.

I am grateful that the exhaustion of caring for her and being in the hospital all the time is mostly keeping me from thinking clearly.  Because when I do, all I can think of is, will she live to see this baby, her newest grandchild, the one she dreamed will be the girl she has longed for?  What will I tell DS (4), who worships her?  Is he old enough that he will always remember her?  How will I explain this sickness to him?  And if she dies?  How to explain that to him?  How to explain it to me?  And what will happen to my father?

And in the deepest corner of my mind, this: am I strong enough to do this? How can I keep preparing for our birth while this is going on?  (I'm either 33 or 35 weeks now, we're not sure)  And what about after?  How will I care for a newborn, and my mother?  I suppose I just will, as women have for generations.  But that doesn't make it any less frightening.

Update:  The surgery was last night.  It went really, really well.  Much better than I had dared hope.  They think they got 99% of the cancer.  They did a full hysterectomy, stripped it from her bladder, removed the fatty tissue around her abdominal cavity ("free tummy tuck" said the nurse, haha!), and removed 2/3 of her bowels.  But she won't have to have a colostomy bag.  They put in a feeding tube to help her get nutrition now and during chemo, which is good because she is the pickiest eater anyway.   She is in ICU for 3 days, then admitted for 7 to 10, and then chemo starts in 3 to 4 weeks.  The surgeon and staff seem really optimistic.  It's the best news I could have hoped for.

In reading all of your kind words and advice, I am bowled over by the sheer strength of the mothers (and others) on this board.  We endure, we love, we cry, we keep moving forward.  Above all, we suck it up and do what needs to be done.  I am amazed and grateful to have a community (even cyber!) of such wonderful women.  In reading all that you shared, sometimes I cried, but above all it gave me the strength to know that others have been through trials like this, and came out alright.  

DS seems to be dealing well with it all; he wanted to know what her sickness was called, and I told him.  It was actually nice to tell someone who hasn't yet formed the idea that "cancer is death".  I'm going to have him do a Get Well card today, and take him up to the waiting room to see his PawPaw.  

One day at a time ...

Tags: mothers, cancer, birth (all tags)

Permalink | 42 comments

  • Sending thoughts and prayers your way (0 / 0)

    I've been there, truly I have (although I wasn't pregnant). I don't know if it helps to hear this, but I know you will find the strength to handle this. I went through cancer twice with my mother and was in the doctor's office when he told her there was no chance of recovery.

    The piece of hope I offer for you from my own experience is this: it is really bad at the beginning when they are diagnosing and sorting everything out. It took them four weeks (and an eventual biopsy of my mom's lung) before they were able to diagnose her second cancer. She was in the hospital most of that time and it was exhausting and hard. But after that she went home and was in treatment and hospice and we were all able to calm down and sort through our emotions. Not that the next eight months were a cakewalk, but we did achieve some calm and normalcy, and my nephew, who was two at the time, was able to spend lots of really special time with his Momma.

    I'll be thinking of you today. Remember, please, to rest when you can and to let yourself be as sad and upset as you need to be.

  • Aw Inky... (0 / 0)

    I am so sorry about your mother's diagnosis. I hope the surgery goes well, although it sounds like you are bracing yourself for the worse.

    Hugs to you and your family. You are in my thoughts. Also, I know this is impossible to do at this time, but PLEASE take care of yourself. YOU need rest!

  • Sending healing thoughts your way (0 / 0)

    What a shock for you and your family. Please forgive yourself for the fight you had with your mom  - it's a mere blip on the radar screen of your life with her.

    You will indeed find the strength to do this because, honestly, you have little choice. Just be sure to ask for help and take care of yourself in the process.

    I wish you and your family good luck, peace, and bravery as you face the challenges that lie ahead. Si se puede.

  • sorry (0 / 0)

    I'm so, so sorry.  My dad died of cancer, four months after diagnosis, while I was engaged.  He died six months before the wedding, which we then postponed. When the wedding finally happened, it was bittersweet to say the least.

    I don't have any advice to give you except to take life day by day right now.  Take everyday that your mom feels Ok as a victory and comfort her and do what you can for her on the days that she doesn't.  One day, one hour at a time, that's all you can do.  

  • Oh Inky (0 / 0)

    My mom was diagnosed with breast cancer when I was 26 weeks.  Unfortunately, I went into preterm labor two weeks later and had my son.  I don't know if this thought would have happened anyway, but the moment DS was born, I was awash in guilt over every snotty thing I'd ever said to my mother.  She was in agony because she thought the news had caused me to deliver early, which I never believed.

    She lives about 350 miles from me, so her care fell to my father and my aunts.  In a way perhaps we were fortunate; DS was in the hospital for 10 weeks while she was doing radiation. so we knew she had to be in one place and I had to be in another. She finished radiation right after DS came home and was able to come see us.

    The emotions involved in these two great life situations happening at the same time are overwhelming.  But there is hope; especially that you mom will see your daughter in a few weeks.  I do think having something like that to look forward to helps people hang on.  And by that time you will have more information so you won't feel like you're just fumbling in the dark.  Accept all the help you can, for both you and your mom.  Of everyone on your mom's care team, you're the one who needs to be well for your baby.  It's not selfish to take really good care of yourself right now.

    I will be thinking of your family today.  My mom is almost two years into remission, and my son is 21 months old, healthy, and into everything.  I do believe in miracles.

    • my god (0 / 0)

      what a load you were carrying on your shoulders, Cindy! I have a lot of admiration for you!

      • Thank you (0 / 0)

        But to be honest, when you're in the NICU, you see so many other things that make you just grateful that your situation isn't as bad.  Twice I was nearby when I overheard a doctor having to tell a family that the outlook for their baby didn't look good.  I think I cried harder at that than I ever did with anything that happened with Gus.  I learned a lot about gratitude in those days, which is a lesson I desperately needed.

  • I've got no words of wisdom (0 / 0)

    other than prayers and hopes that you'll be held by those around you during this rough time.

  • Big hugs (0 / 0)

    and lots of prayers and positive thoughts coming your way. I know this is a completely different situation but my MIL was diagnosed with colon cancer spread to the liver in April 2003 and she is now cancer free. I hope for as good an outcome for your mom.

  • i am so sorry... (0 / 0)

    sending healing thoughts, prayers and pleas for your mother and your family.  

  • My thougths and prayers are with you (0 / 0)

    Try and stay in the now, if you can at all. Worrying about how things are going to be in the future, even tomorrow, is probably too much right now. One foot in front of the other and take care of your Mom and yourself.

    Blessings and peace be with you.

  • Oh my friend my thoughts are with you (0 / 0)

    but I will share something that I learned long ago - when my father was dying we had a HUGE fight about how loud my music was ( I was 23 at the time) and I felt horribly afterwards.  His oncologis said to me "only in soap operas do people become saints after their diagnosis. they're still the same people who you love and are irritated by - they can still make you angry and that's ok."  don't beat yourself up over this.

    Having helped shepard both parents and my sister through the last days of their lives I can tell you that if you do in fact choose hospice care for your mom  you will be giving her an incredible gift of care and dignity and it will ease a burdne on your family as well knowing what kind of care she is getting.  If the prognosis is better and more chemo si called for there are many many resources out there to help a family through this time-- do NOT be afraid of asking for help -- you need to take care of your own self and your new baby too.  ACS has a lot of resources that are invaluabe.

    finally, do not underestimate your son.  Liza was 3 when my friend Dani died in hospice and she used to go visit her and snuggle her on her bed. She was four when my sister died and 8 this year when my mom died and I never shied away from telling her what happened... and I was eternally blown away by how she got it and how she matter of factly understood -- I never used euphamisms...I said that aunt maries body was sick and eventually her body was going to be too tired to try to fight her sickness anymore and her body would die and her soul would live on in our hears and in our memories and that we can find our loved ones all around us any time we think of them.  

    don't underestimate your mother at this time either -- resist the urge to treat her as a fragile vessel -- let her talk about her fears, answer them matter of factly, don't be afraid to talk about what may happen. the more you talk with each other the more it will help.  And ton'd be afraid to reach out for resources around you.  

    I am here for you anytime you want to talk either here or by email a mkatherine at verizon dot net if you want to drop me a line.

  • Such hearfelt and wonderful (0 / 0)

    MTer input...

    I send along my sorrow and support to you as you face an inevitable human experience.

    I am a hospice volunteer worker and agree with MKatherine regarding its care if that is what is called for at this time.

    I too have experienced the loss of my Mom to cancer, from a distance of 3,000 miles when I had two small children and a husband on the road for work most of the time.  I have no idea how I got through that time, but I did, and so will you.

    As others have said, you are strong, your family resilient -- even little children cope -- often actually better and more authentically than adults.

    Give yourself permission to have your feelings and your family too -- love each other the best you can during this time.   As MKatherine said try to treat your Mom as the strong person she is --- she is not the disease, she is who she has been all of her life.  This is a new chapter, but not the whole story.

    My love and hugs and comforting thoughts to you and your family.  One day at a time...

  • prayers are with you (0 / 0)

    no one can explain how to feel at the possibility of losing one's mother.  no matter how old you become, your mommy is always the best.  we hope to hear updates as things progress, and do take care of yourself.  it is important for your mom for you to be okay, too.  

    much love from one who went through it.

  • oh I'm so sorry (0 / 0)

    our thoughts are with you.

    if you wobba cypress trees then I will wobba you

    by thais on Tue Apr 22, 2008 at 08:01:43 AM PDT

  • sad for you (0 / 0)

    Inky, I'm so sorry.

    My mother died of cancer when my boys were 3 and 1.5.  The 3 year old needed to talk about it a lot.  There is a wonderful children's book that we found extremely helpful, called "Lifetimes: A beautiful way to explain death to children", by Bryan Mellonie.  Long after my mother's death my son was still using the concepts and examples from this book to talk through his grandmother's death.  I highly recommend it.

    Hospice is wonderful - they really understand what everyone needs.

  • My heart goes out to you (0 / 0)

    I know what a scary thing it is to have to say out loud "my Mom has cancer" and I'm so sorry you are having to go through this.  I don't think I can add much to the wonderful advice you have gotten here.  Be with your Mom when you can, let her cuddle her grandson, and I'm sure she wants you to take good care of her soon-to-be new grandbaby too.

  • I'm so terribly sorry. (0 / 0)

    My mother had breast cancer last summer (luckily it was not very advanced).  You have my deepest sympathy during this difficult time.  Hugs to you.

  • I'm so (0 / 0)

    very sorry.  How scary.  There's so much wisdom above, but you're in my thoughts and hopes.

  • My mother (0 / 0)

    was diagnosed with breast cancer a month ago.  I always thought of my mother as infallible.  My heart and thoughts go out to you.

  • My prayers are with you (0 / 0)

    My grandmother died in August (not from cancer), when DD was nearly 2.  She's now nearly 3, and will still point to pictures and tell us where "Baba" is .  Whenever you lose your mom (be it soon or in 15 years) your son will remember her,

  • I have nothing to add (0 / 0)

    other than you will be in my thoughts.  Life is really funny sometimes, isn't it?  We're always seeming to find ourselves in the midst of issues involving the beginning and ending of life all at the same time, it seems.  

  • one day at a time (0 / 0)

    You and your family will get through this. Hugs and love to you.

  • Thinking of you, Inky. (0 / 0)

    I think there's no right answer to all those questions. Just hang in there.

    I'm so sorry.

  • I am so sad for you (0 / 0)

    What a heartbreaking diagnosis.  I wish I had inspiring words or advice, but all I can offer you is my deepest sympathy.  You and your family will be in my thoughts. Hugs . . .

  • Much sympathy (0 / 0)

    Inky, I'm so sorry to hear of your mother's diagnosis. Take care of yourself right now and best wishes on her surgery. I'll be thinking of you.

  • asdf (0 / 0)

    Inky,

    I am so sorry to hear this news. Sending you many good thoughts, and surrounding your mother in bright white healing light.

    Love,
    Lorin

    We cannot defend freedom abroad by deserting it at home. - E.R. Murrow

    by lorin on Tue Apr 22, 2008 at 12:44:47 PM PDT

  • I'm so sorry... (0 / 0)

    I don't know what to say.  Your family will be in my thoughts, and don't forget to try to take care of yourself.

  • So, so sorry (0 / 0)

    Wishing the best possible diagnosis for your mom and a happy welcome into the world for her newest grandbaby.

  • so, so sorry, Inky (0 / 0)

    my hugs and thoughts are with you all. As everyone else has said, once you all know the full lay of the land, you will find the strength to get on. You just will. I am tearing up thinking of you shepherding through the two points in life. Let us know how we can help.

    Rachel

  • Sorry (0 / 0)

    I'm so sorry to hear of your mother's diagnosis.  I am wishing you hope, strength, and courage.  

    "We are the music makers, and we are the dreamers of the dream..."

    by 1plain1peanut on Tue Apr 22, 2008 at 04:48:02 PM PDT

  • Oh, I am so very sorry. (0 / 0)

    Inky, I'm so sorry for this news.  Please try to take of yourself somewhere in all this.  I know you will find answers to all your questions, and please forgive yourself for the fight.  

    I am so very sorry.

  • Hugs and hugs (0 / 0)

    So sorry to hear this.  Don't be afraid to ask for the help you need on any front.  

    --R

  • Your DS will remember (0 / 0)

    I haven't read the other comments, but wanted to say that your DS will probably remember her no matter what.

    My paternal grandfather passed away when I was that age, and I remember him. I had a somewhat messed up childhood, so my memories before that time are fuzzy for the most part, but I have distinct memories of my grandfather.

    Hopefully, you don't need to worry about it, but just in case, it's one less thing to worry about.

    Wishing you strength in the coming weeks, months, years.

    I lost my mom to cancer less than two weeks from 5 years ago. Like your mom, she didn't like doctors, and didn't go until it was farther along than it could have been. Hers was esophageal, though, which is one with a low recovery rate in the first place. It was horribly hard, especially because I wasn't local.

    And she died thinking I was expecting her first grandchild. I was, but I had miscarried within days of her surgery. I didn't have the heart to tell her.

    DS was born less than a year later. He's never known her as a person... just a shared memory.

    -Cheryl

  • so many of these comments (0 / 0)

    are such testaments to strength and resilience -- not the absence of deep sorrow or loss, but absorbing experiences, coming to terms with them however we can and in whatever time or fashion and continuing on.

    I was brought to tears thinking of the journeys we all walk.  Bravo to the human spirit.  The sharing of stories here is the very thing we've all been talking about in one way or another -- even through this thing called cyberspace, we can reach out and help each other.

  • so glad surgery went well (0 / 0)

    I hope that the rest of her treatment proceeds well and successfully and please keep us updated.

    Take care of yourself! Hugs!

  • That's great news (0 / 0)

    I'm sure this is hard on your mom physically, but what great news that they were able to get the cancer. I wish her the best of luck during her chemo.

    Thanks for letting us know what happened. And please, remember to get the rest you need too, at least as best you can.

  • Wow... (0 / 0)

    What a hard time for you and your family. I'm thinking of you.

  • I couldn't wait to read your update (0 / 0)

    and celebrate your relief in knowing that the situation is the best you had hoped...that's tremendous news.  

    The drawings and cards that my daughter and son made for my parents when they were sick still hang right in the same spot that they were first hung 11 years ago.  My Dad wouldn't think of taking them down, ever.   My dd is 17 now and when we visit him these many years later, she loves seeing the tenderness she displayed back then, and the fact that those simple gestures meant the absolute world to my parents - her grandma and grandpa.  Their all kinda worn and faded, but the love shines right through.  Yup, even in the really tough stuff there is beauty, and love and reasons to rejoice.

    I can't tell you how much my heart rejoices with you for this new hope.  

  • Thanks for the update (0 / 0)

    I've been thinking about you and your mom and wishing you well. Hang in there.

  • So sorry (0 / 0)

    to hear your mother is ill. And happy that the news from the operation was the best you could have hoped for. I'm keeping you in my thoughts and wish all of you strength to get through this. Amidst all the turmoil, please try to look after yourself as best you can, your baby needs you too.
    Take care,

Permalink | 42 comments