Mother Talkers

Fearmongering doctor

Wed Jan 09, 2008 at 02:22:08 PM PDT

I wasn't sure if this rant was diary-worthy or not, and then wondered if other parents have experienced anything like what we just went through.

We recently discovered we have black mold in our house -- specifically in DS's bedroom, which shares a wall with the kitchen.  We had heard all the drama stories about mold and decided we would not become hysterical and burn down our house, but instead just carefully remove the crud, repair the damage, and move on with our lives.

That plan worked quite well for a month or so, as we got rid of the first "mold remediators" whose idea of remediation was to set up very loud dehumidifers in our house and not answer their phones for a week of so.

We then found some sensible people who tested the mold, gave us a report, made a plan for removing it, and suggested we find out if DS is allergic to mold.  We thought that would be a good idea, because DS has been very fatigued for the past few months and we have not been able to figure out why.  We called our trusted pediatrician, who referred us to an allergist in his building.

DH took DS to the allergist and came out of the appointment freaked out.  The doctor said DS has asthma and told DH we should move out of our house immediately.  He implied we were negligent parents for simply moving DS into the den to sleep for the duration.  We moved out that day (and have been living in a hotel ever since).

During the first appointment, DS was tested for many interior allergens -- including mold -- and wasn't allergic to anything.  The doctor apologized for not having the special black mold test kit, but promised he would order it for our next visit.  Meanwhile, he said he heard wheezing and put DS on Singulair.  He said his lung capacity was only 77% of normal.  We were shocked, as DS doesn't cough or complain of shortness of breath.  We felt so bad -- what if DS has been so fatigued because he can't breathe?  What kind of parents don't notice their kid isn't getting enough air???

Two weeks later, it was my turn to take DS to this doctor.  DS was tested for horses, elm trees, and god knows what else.  He wasn't reacting to any of them, thank goodness, though since we don't keep livestock I wasn't actually too worried about those things.  I asked when the black mold test would be done.

Turns out there isn't any test specifically for black mold.  

Come again?  The only reason we were there was for that test.   When I complained, the doctor sent us to the lab for a blood test for black mold.  (Turns out that is about as useful as a blood test for sunlight.  Pretty much everyone has the antibody.)     Before we left, he briefly listened to DS's lungs again, said he could still hear wheezing, and recommended two more visits -- once after another month of Singulair, and again after a month off the Singulair "to see how he does."

Feeling unsettled, I made an appointment with a pulmonologist who examined DS (thoroughly, in constrast to the rushed and cavalier exam done by the allergist) and pronounced him perfectly healthy.  His lungs are great and there is no need for any medicine or any more office visits.  I was really happy about DS's health, but also mad about the allergist.  He was full of it!

I was so angry to think of the kids who are wasting their play time waiting in this doctor's office after school, and wondering how many are taking meds or missing P.E. for no reason!  

I feel like this guy preyed on our vulnerability about our son's health.  It's not his fault we over-reacted and moved out of our house -- but, when a doctor tells you you're making your kid sick, you act.  You buy and administer unnecessary medicine, and you make lots of doctor appointments (not to mention contemplating throwing away a perfectly good mattress).

I guess I feel punk'd.   Have you ever had a doctor make a diagnosis or a recommendation that seemed fishy to you, as opposed to a genuine error?

Tags: doctors, children's health, fear-mongering (all tags)

Permalink | 43 comments

  • Jesus Christ (0 / 0)

    To answer your question: not yet, but then again, Jess is only 2 1/2...

    How awful, to have gone through all that guilt and fear, not to mention having given your son medication that has ultimately proven unnecessary. What are you going to do? I would be very tempted to send the doctor a letter with the pulmonologist's diagnosis, and also write to the state branch of the AMA. If you're really in the mood for it, I'd also drop a line to Medicare and the HMOs that the guy participates in; if he's charging for unneccessary tests, that's fraud.

    My mother had the opposite problem when my sister was a little'un. Our pediatrician kept diagnosing her with "croup", but it turned out she had a.) asthma and b.) severe food allergies that would trigger the asthma. My mom kept saying to this guy, she's sicker than that, I'm not sure we're catching the right thing, and was told "you're just being an hysterical mother." It was almost a relief for her to get the diagnosis, because it at least let her know that she wasn't being crazy...

    • Parents are so (0 / 0)

      vulnerable to this kind of criticism. I bet your mom still fumes about this.

    • thank you (0 / 0)

      for sharing my outrage :)

      I drafted a letter to our pediatrician, cc'g the allergist.  I wanted to let the ped know not to refer anyone else to the guy, and why.  I have always trusted our pediatrician so much and the fact that the referral came from his office made the allergist's recommendations carry more weight with us.

      I don't think writing to the allergist would make anything better.   But I would feel better if I knew kids weren't being referred to him.

      Your poor mother!  I still feel like there's something going on with DS that hasn't been diagnosed yet, so I think I know some of what she was feeling -- except my kid is not coughing in a worrisome way, like you sister probably was.   She must have been terrified.  

  • Of course this is rant worthy! (0 / 0)

    What a rotten doctor and horrid experience. Wow! Why would he do that?

    • ka-ching! (0 / 0)

      Seriously, I think it's all about the money.  How sad is that?

      • Oh yeah... (0 / 0)

        Allergies are big business.  There's the allergy medicine, and then if you go the route of immunotherapy, there's the once a week shots.  

        FWIW... I think this is rant-worthy as well.  You put your trust in doctors to help you.  I wouldn't appreciate being jerked around either.  Asthma isn't a diagnosis you just throw around.  It's serious stuff.  There's got to be a better way to diagnose that than putting a kid on medicine just to see if it works.  Sheesh.

        "If it's not Scottish, it's crap!" ~Mike Meyers

        by 1plain1peanut on Thu Jan 10, 2008 at 06:21:38 AM PDT

        [ Parent ]

        • immunotherapy (0 / 0)

          FWIW, immunotherapy tremendously improved the quality of life for myself and especially my sister; was worth the cost (well, my folks thought so, since they were paying for it.)

          • Sure... (0 / 0)

            I guess I was just saying that allergist sounds like he doesn't know what he's doing...prescribing medicines willy nilly.

            I did immunotherapy for a while in my early 30's too.  And I do think it helped a bit.  I'm definitely not against any medicine or immunotherapy when it's needed.

            "If it's not Scottish, it's crap!" ~Mike Meyers

            by 1plain1peanut on Thu Jan 10, 2008 at 02:46:33 PM PDT

            [ Parent ]

      • My guess is (0 / 0)

        It's the "when the only tool you have is a hammer, everything looks like a nail" situation. I doubt he consciously considered your son a cash cow.

        I'm glad it turns out he's OK. Heck, maybe your son was reacting to the mold and moving him out is what helped. It can be very subtle. I've seen improvements in DD and DH when I've moved cardboard boxes out of the house.

  • Shoot first (0 / 0)

    DS had bronchitis with wheezing and our ped wanted us to put him on 3 drugs, 1 to be taken every day forever!  He is fine now, has been for months.  He may end up being asthmatic like many men in my family, and need a rescue inhaler, or he may be allergic to lots of stuff (like the cockroaches that are overrunning our apt.), but he hasn't wheezed since that one illness.  I wish I hadn't let him panic me into buying this stupid ventilator machine.  I guess we'll get some use out of it if he has another attack before he's old enough to use an inhaler...

    Your allergist is a jackass.

    • do people sell (0 / 0)

      stuff like that on eBay?  Maybe you could recoup some costs?

      I'm glad kid sparky isn't wheezing anymore and I hope he never needs an inhaler.   Or, I hope he has one if he ever does need it :)

    • Those little nebulizer machines (0 / 0)

      are a godsend.

      Hang on to it - it may save you some emergency visits over the next few years, especially if you have asthma in the family. He is going to get colds and the like again, and he may be asthmatic under those conditions. DD only has asthma symptoms when she is sick with something else. She can run for hours without any troubles otherwise.

      DH uses it too, and I have no idea why we didn't get one for him years ago.

  • Send him the bill. (0 / 0)

    Send the damn allergist the bill for your hotel stay.

    Honestly, what a jerk.

  • Another vote for (0 / 0)

    rant worthy.  The doctor sounds like an idiot or an extortionist.  What kind of allergist doesn't know that there's not a test for black mold?!

    When we were looking at houses, I wanted a lead test.  I called a lead guy, and asked the receptionist about the cost.  
    "$899.00.  Plus mileage."
    "And what do I get for that?"
    "Um...we tell you if there's lead or not."
    "I was hoping for something along the lines of a risk assessment."
    "Oh, that's $300.00 extra."
    "So...What advantage does that have over, say, a lead test I could buy in a store for fifteen dollars?"
    "Um...what don't I have him call you back?"

    Remembering horror stories of the black mold people extorting people, I didn't return his calls.  I'd rather get mixed up with the mafia.  I'm so sorry you have to deal with this, but at least your mold guy sounds good.

  • Ok, that is horrible. (0 / 0)

    Come again???? is right....JAYZUS.  I feel bad for you.  What a horrendous ordeal and on top of the emotional jerking around, to have to move...good grief.

    I haven't ever had an experience like yours, and I would be fuming mad.  So sorry for your understandable frustration.  

    By the way, I don't think your moving was an over-reaction --- that would seem reasonable given what he told you.  And I do think he is responsible for giving the wrong information which led you to a flawed conclusion but the right one given the info.

  • Horrible (0 / 0)

    Horrible, horrible.  Not sure if you had to move out anyway to let the mold guys do their thing, but if you didn't, I would really want to sue him for all that money you spent on the hotel.  

    I have heard lots of shady stories about mold remediators.  I used to live in a condo association and there was a huge scandal because the exterminator they used decided to make himself a mold remediator and he was finding mold all over the place, and then "remediating" on the association's dime.  

    Your people sound ok though.

    I have heard stories about allergists too, people go to them and they are all of a sudden allergic to everything under the sun.  

    But that's great that your son has a clean bill of health!  Not that he always didn't, but what a relief!

  • wheezing (0 / 0)

    If your son had been wheezing, your ped should have caught that, ours did with Eli even though we didn't hear anything (until she had us put our ear to his back and then we heard it, but who the hell would do that normally?). Don't blame yourself for any of this, you were only doing what you thought was best for your son!

    I would also write a letter to the medical board of your state regarding this allergist.

    I'm glad to hear your son's lungs are healthy. Have you had him tested for anemia?

    • that was one weird thing (0 / 0)

      Because we've been worried about the fatigue, we had taken DS in for a very thorough work-up by his regular doc in the fall.  It was shocking to me to hear that this allergist heard wheezing when the ped didn't, because the pediatrician is extremely conscientious and thorough.  

      Should have made me think twice about the allergist the minute I heard that.  Come to find out, there was no wheezing to hear.  

    • P.S. (0 / 0)

      Yes, anemia, mono, Epstein-Barr, and whatever else the pediatrician could think of.  Fatigue is one of those things that I think drives doctors crazy because it's so non-specific.  

      All of the tests were negative.

  • Absolutely rant-worthy (0 / 0)

    I tend to have a lot of trust in my medical professionals, and having a baby spend ten weeks in the hospital probably added to that.  But still, what happened to you was crap.  We were told DS has chronic lung disease, basically because he had to be on oxygen for over 8 weeks.  We asked what we could expect with that. We were told possibly asthma, but that's more because both my brother and one of DH's nieces has severe asthma and it's very genetic, which I didn't know.  I know there is also an environmental aspect, but for this doc to take advantage of the fact that you were already concerned because of a specific reason is inhumane.

    Since I was told the day DS was born that I couldn't possibly be in labor if it was my stomach hurting & not my back, so my ob/gyn wouldn't see me, and it turned out I was actually fully dilated with contractions less than five minutes apart, I will be going no where NEAR that practice if I have another child.  Here in MN there's an independent web site where patients can rate doctors/hospitals, etc., and I've found it interesting & helpful; I  would think there might be one for where you live.  I also want to read a recent book called "How Doctors Think."  I've seen the author interviewed, and it sounds like not only does it help you understand the medical professional mindset, but prepares you to deal with it so you as a patient/consumer get the care you want & need.  

  • So nuts (0 / 0)

    I totally believe this is diary-worthy. Hell, I was very very angry when my OB's office failed to give me my diabetes test on time when I was preggers - didn't even follow their own schedule, which they gave me a copy of at the beginning of my pre-natal visits. So incredibly steamed (because I had it very badly untreated for an extra unnecessary month).

    This is more serious, because it seems even more egregiously wrong and off base. You gave ds meds - and had the inconvenience of living in a hotel while working on his apps! The fear mongering is not the least of it, either.

    I hope your ped takes your letter to heart.

  • How horrible! (0 / 0)

    We want to trust doctors, but believe me, there are many with their own agendas.  These are the types who will make such claims...dealing with chronic health problems, I've never personally encountered such types, but I've heard many stories from others in support groups who have had some pretty wild suggestions made.  Its one area in which I'm "conservative"...I tend to go with the very tried and true and to trust what mainstream sources are saying. Doctors can be whacky and out there, too...just a couple of days ago, I was rather shocked to see a local doctor on a local tv station pushing a line of supplements.  I'm not against supplements, but for a doctor to push a particular product and brand name in such a way?  Not ethical...we'd all scream if this doctor was on air pushing Galaxo or Eli-Lilly.

    I saw a midwife who told me that she'd never seen anyone who consumed caffeine during pregnancy have a "good outcome".  I called her on her BS immediately...ofcourse, she couldn't back up her claim and as I had consumed caffeine during all my previous pregnancies, she quickly tried to back down.  

    • That is a giant number of women, (0 / 0)

      and therefore babies, in the "drank caffeine while pregnant" category. It's so illogical on it's face that that midwife should be embarrassed. For being illogical, or being controlling, or both!

      • Yes, I gave her what my husband (0 / 0)

        calls "the look"....you know, that look one gives when  either something sticky and gooey is stepped on or when someone says something that is totally absurd.  I recall looking her straight in the eye and telling her that it was her lucky day...I had always drank beverages with caffeine during pregnancy and at the time I had six very healthy children.

    • Huh? (0 / 0)

      I saw a midwife who told me that she'd never seen anyone who consumed caffeine during pregnancy have a "good outcome".

      HUH?  Where had she been, living under a rock?  I wonder what her definition of "good outcome" was though, maybe it was one where the mother simply meditated through the pain, with nary a scream or grunt.

      In which case, most coffee drinkers would fail miserably.

      • I wondered about that (0 / 0)

        has the midwife just not met very many people?

        • Very bizarre (0 / 0)

          Maybe the coffee moms went into severe caffeine withdrawal during labor and started throwing stuff at her and yelling for drugs, any drug.  

          Anything to make the pain, I mean the caffeine-withdrawal headache, go away!

      • I put it down to just (0 / 0)

        carelessness in speaking patterns.  The woman wasn't stupid, and she was not a bad midwife.  I guess I'm just bugged when people make such careless mistakes.  Most of us would know that such a statement was totally ridiculous, but geez, you gotta wonder how many women might actually fall for it and worry themselves silly over the cup of coffee they had that morning!

        And I drank soda while in labor.  Every time.  Never a grunt or a scream did I let out during any of my totally unmedicated births.  I will say, however, that I cut back on caffeine while nursing....too much did seem to make my babies irritable.  

    • around the world (0 / 0)

      a friend of mine got pregnant while on a her year-long world-wide honeymoon (we should all be so lucky!), and did prenatal visits along the way.  Here's what she heard:

      In France, they advocated a glass of wine a day for circulation.

      In Japan, hot baths (as hot as you can stand) were recommended.  

      In Ireland, a pint of Guiness was a daily dietary supplement (B vitamins, don't ya know).

      Thai Drs pushed at least a serving of fish a day.

      In Singapore, spicy food was good for the heart.  

      And to top it all off, a co-worker in Amsterdam was told not to quit smoking when she got pregnant, because the stress of quitting would be bad for the baby.  Seriously.  

      I have to believe that fear of malpractice lawsuits plays a big role in the US "freakout" syndrome, which is really, really sad.  

      --R

      • Back 24 years ago, when I was pregnant (0 / 0)

        for the first time, the recommendations were very different, too.  We were also told that quitting smoking "cold turkey" might not be the best thing during the early months, and that one alcoholic drink a day was not a problem.  

        Considering that all the women I know who had babies back then, I can't think the advice was bad.  Our pregnancy outcomes were as good as they seem to be today...in fact, it seemed as if there were less complications.  I think I'm in the camp that says undue fear and panic might be a cause for problems.

      • cigarettes, wine and beer (0 / 0)

        An acquaintance in France told me the same thing - that her OB recommended that she not quit smoking because it would cause fetal distress! At least she was only a three cigs a day smoker, as opposed to a two-pack a day smoker...

        I heard the same things about wine and guinness in London - additionally, a glass of something was supposed to help with relaxation and milk let-down. I must admit, a half pint of Guinness was wonderful every now and again. We had a nice pub across the street from our flat in London and I would indulge.

  • I am asthmatic (0 / 0)

    and as a child, the dr did the same thing to my parents: no rugs, window treatments, stuffed animals, pets, overstuffed furniture....

    They laughed at him and ignored it all.  People are often shocked that they didn't at least get rid of our cat, and I kind of think that if he had only mentioned the cat they might have done it.  But the extremism set them off, and the good news is that 30 years later, I'm not allergic to cats at all -- just dogs (which is very atypical).  

    I remember that when we get the freak-out advice from the dr.  

    --R

  • Bad doctors are everywhere (0 / 0)

    I'm sorry for the doctor your drama has created.  I've had some really bad doctors.  5 of my doctors have had their medical licenses revoked and I've gone to way more than that who have had their licenses suspended for awhile.  Those few times that I get a doctor who is honest, treats me with respect AND doesn't act like I'm a dumping ground for trial drugs is a keeper.

    • i know what you mean (0 / 0)

      I'd consider the pulmonologist who said DS doesn't have asthma a keeper, except we don't need a pulmonologist anymore :)  i've definitely been to my share of duds.  The good part of it is that I now know to cut my losses much, much sooner.

  • File a complaint against (0 / 0)

    the allergist, with the appropriate agency in your state.

    And remember -- a second opinion before administering drugs can be worthwhile.

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