Mother Talkers

Peanuts and Back to School

Sun Aug 12, 2007 at 10:14:48 AM PDT

Our peanut allergic son is attending a new preschool this year.  For us this can be quite anxiety provoking, since it means new teachers, directors, and parents who may or may not be aware of the dangers of peanut allergy.  We decided to hire a nurse from the local health department to train the staff on peanut allergies.  We worked with the director on logistics for keeping our child safe.  In our area peanut-free schools are rarer than in many other parts of the country, so we talked about the pros and cons of such a decision for the school.  

This week we attended the orientation where the director announced that our son's classroom would be peanut-free.  You should have seen the eye rolls, the side glances between parents, and the whispers.  The purpose of this entry is to help you understand peanut allergy if such an announcement is made at your child's school.

Perhaps the fact that it's called an "allergy" makes people think this is not a serious issue.  One parent later said to me (with simultaneous eye roll), "Oh, your child is in the peanut-free room."  When I then said, "Yes, he's the one with the peanut allergy" she asked if he breaks out in hives.  After explaining that he does break out in hives, his throat swells, and he cannot breathe, she backed off.

According to Mayo Clinic, peanut allergy affects 1.5 million people in the U.S. and accounts for 80% of fatal and near-fatal allergic reactions each year.  

Peanut allergies trigger an immune system response. Your immune system reacts to proteins found in peanuts. Exposure to peanuts or traces of peanuts may cause immediate reactions, such as itching, redness, swelling, shortness of breath, wheezing, nausea, abdominal pain, lightheadedness or loss of consciousness (anaphylaxis).The chemicals in peanuts can cause hives to develop on the areas of your skin that have come in contact with peanuts or traces of peanuts. Hives may spread to the rest of your body.

The most serious and potentially deadly allergic reaction to peanuts is an anaphylactic response. If you are highly sensitive, an anaphylactic reaction can develop immediately after peanut exposure, causing the airways (bronchi) to constrict, making breathing difficult. Blood pressure may drop to life-threateningly low levels, making you feel dizzy or lose consciousness.

 

In our son's case, exposure to one bite of peanut butter (which he spit out and did not swallow) resulted in massive swelling on the hand, up the arm, up the neck, onto the face, and into the mouth.  He began wheezing and gasping for air within moments.  We were very lucky that he didn't die.

Be an advocate for my son, for the children in your child's school, and for their parents.  If you find yourself in an orientation meeting where you are told that a classroom or school is peanut-free, make a point to be supportive and explain the dangers to other parents who may not be informed.

Tags: peanut, allergy, school, preschool (all tags)

Permalink | 30 comments

  • To build relationships with the parents (0 / 0)

    We plan to present each family with a butter spread made from sunflower seeds, a nice letter explaining peanut allergy, and a list of recipes for sunbutter cookies and snacks.  Hopefully this will help get them on our side.

    "We've GOT to make noises in greater amounts! So, open your mouth, lad! For every voice counts!"

    by progressiveinky on Sun Aug 12, 2007 at 10:16:44 AM PDT

  • I love how proactive you're being (0 / 0)

    I'm sorry you have to deal with snideness but I think every time you have a conversation like the one you described, you'll earn an ally.  And giving people food always seems to work :-)

    I guess it varies from place to place.  At my son's preschool we were told there was a child in the class with a severe peanut allergy.  I don't remember anyone ever saying a word or exchanging a look about it.  You have a vulnerable child, you protect him.  Period.  

    Maybe it was easier for us because it was half-day and the kids didn't bring lunches with them, so parents whose kids would only eat PB&J weren't inconvenienced.  Everyone seemed to find a way around peanuts in the snacks they sent.  My kid has never particularly liked peanuts or peanut butter so maybe is was harder for some people and I just wasn't aware of it.

  • Good for you to be proactive and making change (0 / 0)

    by educating  others' thereby eliminating or diminishing unrealistic reactions of shallow ignorance.  

    It is interesting to note that when children are educated about these issues, they are respective and desirous of wanting to support and help their fellow students.  It amazes and discourages me that it is the adults that cause the lack of empathy which then trickles down and ultimately pollutes their's and other children's thinking and actions.

    I wish you good luck in your endeavors for positive change and I admire your efforts.  Peanut allergies are very serious and as you point out can be life-threatening.

    • We also donated (0 / 0)

      a book for the room that talks about peanut allergy.  I think it will help the kids to understand as well.

      "We've GOT to make noises in greater amounts! So, open your mouth, lad! For every voice counts!"

      by progressiveinky on Sun Aug 12, 2007 at 06:31:47 PM PDT

      [ Parent ]

      • You're being so wise (0 / 0)

        and will do more good with that approach and have a greater impact.  Way to go!  I think many people don't realize how narrow their immediate reactions are to subjects about which they aren't educated but once they  understand the dangers of this particular situation would be on board with doing the right thing...at least we can hope.  Good luck.

  • sunbutter (0 / 0)

    shannon,is this safe?  I ask because for the first time since my kids started attending their pre school, one of my sons has classmates with peanut allergy and we've gone peanut free for his lunches.  I thought about other nut butter spreads but was a little worried about whether they were safe if they were perhaps manufactured in a plant where peanut butter was made.

    We have familiarity with the severity of this allergy because our best friends' son has it and I had a roommate after college who had it as well, so I had absolutely no qualms about finding something else to pack for him. For the past two weeks, I've made him homemade pizza and sent a slice in, and this week he requested chicken nuggets (though he doesn't know he's getting vegan nuggets because the real chicken ones have twice as much fat).

    • Yes, I hear your concern here. (0 / 0)

      Our son is not allergic to sunflower seeds and most (according to our doc and everything we've read) people with nut allergies are not allergic to sunflowers.  There is an issue with seeds that are processed in the same plant as nuts but sunbutter is a special brand  made in a nut-free environment.  http://www.sunbutter.com

      "We've GOT to make noises in greater amounts! So, open your mouth, lad! For every voice counts!"

      by progressiveinky on Sun Aug 12, 2007 at 06:34:46 PM PDT

      [ Parent ]

    • Oh, and one more thing (0 / 0)

      We don't plan to give the sunbutter to our son b/c it looks too much like peanut butter.  He has seen peanut butter and knows to avoid it, but this way if other kids are eating sunbutter for breakfast there's no risk of contamination.

      "We've GOT to make noises in greater amounts! So, open your mouth, lad! For every voice counts!"

      by progressiveinky on Sun Aug 12, 2007 at 06:46:43 PM PDT

      [ Parent ]

  • I'm sorry you and your son have to deal (0 / 0)

    with this.  While not having allergies, I can relate to the rolling of the eyes one receives when asking for what many consider "special treatment" due to medical conditions.  It always amazes me that there's people out there who really seem to prefer to believe that people just make this stuff up....hiring the nurse is a great idea.  Sad that its necessary and that your word alone doesn't go far enough, but you can't fight all the battles all the time.

  • One more thing (0 / 0)

    you might think about doing is to send a letter to the parents in the room. My DS just attended a summer camp/preschool and there was a child with a peanut allergy. The parents of the girl sent a letter to all of the parents explaining why it is so serious and most helpfully, giving a list of foods that are safe. They also gave their number for people to call them if they had a question about a food (such as sunbutter above) and they also listed snacks that are safe for their daughter if parents wanted to bring something for everyone (for a bday). But also they kept a stash of safe snacks at the school and told people not to worry about their kid if they want to send something else. I thought it was helpful to have a list of foods that i could pack for lunch that wouldn't cause a reaction in her child. i didn't have to guess and I didn't have to worry about it.

  • really respect your actions (0 / 0)

    and how proactive you were in hiring the nurse. I'm glad the school was so responsive, and hope that through education, the unconvinced parents will make the connection.

    This is another reason why I'm glad that my daughter's daycare has its own kitchen; the director explained to me that because they have a few children who fall into the major allergy camps (nuts, dairy and egg), they just cook entirely without all of them for everybody. If there's a birthday party, the parents must bring something without the above ingredients - center rule. As Jess has the egg allergy, it was a source of tremendous comfort for me.

  • Sarted a fight with my MiL (0 / 0)

    the last time something here was posted about Peanut allergies- her opinion was similar to what you experienced- eye rolls and an insistence that if a child was "so allergic" to something, they should just have to make due with sitting at a different lunch table and avoiding contact with other kids. She was so strange about it, indignant at the idea that someone could have told her that her kids would have to avoid peanut butter at school. After trying to be factual I finally just said "well thank god (DD) isn't allergic to anything like that. I'd hate to ask you to avoid it, I guess. But I tell you this mom, if some other parent insisted on doing something that endangered my child? There would be hell to pay." She kind of backed off, when I framed it as a "what if it were YOUR grandchild?" but seriously. What if it WERE your kid people, would you respect people who treated you like you were overly paranoid?

    Good luck with everything progressiveinky!

    • had similar problem with my MIL (0 / 0)

      she had a very hard time understanding the fact that Jess has an egg allergy. We were lucky in that the first (and thus far only) time she's had a bad reaction, it wasn't life-threatening. But she just refused to think that it was a problem - kept baking cakes, making custards, etc., etc. and bringing them over, and when I reminded her that Jess couldn't have them, she'd say "oh, a little bit won't hurt." Took a certain incident (that I've retold here at least twice, so I won't burden y'all!) for her to finally get it.

      I wonder why people find allergies so threatening.

      • I find this (0 / 0)

        puzzling, too.  And its not just allergies...its all medically related concerns.  While I don't pretend to understand where the attitude comes from, I can tell you that the result is that those who deal with some kind of medical condition go through their lives feeling as if they somehow have to "prove" their point.  It also creates a fair amount of guilt and non-acceptance.  

        • I hear you (0 / 0)

          both my sister and I have asthma, although my sister's was/is far worse than mine (plus she had life-threatening dairy allergies as a kid). The amount of sturm und angst my mother had to go through, particularly with my sister, to get basic understanding across was unbelievable. It affects the whole family dynamic; we were all far more protective of my sister than would normally be the case because we were always so hawk-like to make sure that she was safe. I believe she was also really self-conscious about it, too - she always was so furtive about doing her medication; we had a whole roster of euphamisms for her inhalers.

          It's why I'm particularly so grateful with the matter-of-fact manner about allergies and treatments projected by the daycare center Jess attends. The staff are all trained in administering Epipens, there are action plans on the walls, and the whole pragmatic "eliminate so as not to discriminate, or make life more difficult" attitude reassures me a lot.

          • School (0 / 0)

            Good to hear that Jess's school takes allergies seriously. The nursery school where Jack will be going is also serious about this. We just got a letter from the school announcing that all the classrooms are to be nut/seed free (all types of nuts/seeds not just peanuts), and if parents want to bring in special snacks for holidays/birthdays etc. they should be store bought with a label so that the teachers can check to make sure that the kids with allergies can eat them. As much as I love to bake, I can totally understand why they are asking parents to do this. He will have lunch as part of his program, so cream cheese and jelly will probably be in the regular rotation of lunches he brings.

            Luckily DS has no allergies, but I have become an avid label reader. I was very surprised to find that there are several brands of multigrain bread on the market that have nuts in them. I had no clue!

            • storebought (0 / 0)

              Now this reaction I do have a problem with - the requirement that snacks be storebought.

              My child isn't allergic, but I don't really want her stuffed with red dye and HFCS and trans fats and the like on a regular basis.

              I understand that traces of peanuts are an issue, and while I know you can trust me and my kitchen, I understand you might not be able to trust everyone. Somehow we need to find a way that we can trust people to bring things from their own kitchen or the local bakery -- this is why I think so many people end up rolling their eyes about peanut allergies.

              As I think about it, I'm not sure I could find cupcakes or cookies that don't have that "made in a facility that processes peanuts" label.

              How can we address this?

              • I think this is a good discussion (0 / 0)

                How do we establish a community of trust?  Well, for us the question came up with the sunbutter that we will give to the other parents.  If sunbutter looks just like peanut butter, we have to trust that they are actually using sunbutter and not peanut butter in the lunches.  Lucky for us, we are in a very small preschool situation and plan to join the parent groups.  One of us will be at each parent meeting and be volunteering for all activities.  This is important no matter what, but for us it's important to build that community of trust so that the other parents know us and learn that we are not being unreasonable.  Perhaps the trust comes with education and advocacy.  If the other parents understand the full implications, only then can we be sure that no one will break the food policies.

                "We've GOT to make noises in greater amounts! So, open your mouth, lad! For every voice counts!"

                by progressiveinky on Mon Aug 13, 2007 at 01:49:43 PM PDT

                [ Parent ]

                • I think you've got a great approach (0 / 0)

                  and I know a lot of people in the same situation ban all nut butters just to be safe. Hopefully the other parents will respond and it will all work out well.

                  To clarify, I know other parents will bring Wal-Mart cupcakes for birthdays and I don't sweat that. But to me, food is political, and I really don't want to buy the hypersweet-full-of-additives stuff when I can make really good and somewhat healthier items at home. I worry in general that in the name of "food safety" we've forced, perhaps inadvertently, the corporatization of our entire food supply, where the food for our entire nation is made in just a handful of MegaFactories, and I do fight further examples of that when I can.

                  I hope you'll keep us updated on how it goes.

              • At first... (0 / 0)

                I was a little upset about it too. But then I realized that store bought doens't HAVE to equal sugar/preservative/chemical loaded. There are lots of options on the market know for more wholesome/heathier foods. And, who says that special treats have to be baked goods like cup cakes? Why not something like fresh fruit (I know...I'm a no fun mom right)? Luckily, we live in an area where there are stores like Whole Foods and other specialty markets where you can get some cool treats that DO have the required ingredient label.

                I don't blame the school. They are just trying to make sure that none of the kids get hurt. Yeah it stinks that they don't trust people, but like Rachel said in another comment, some people just don't get how serious the probelm can be no matter how much education you give them, and unfortunately it ruins it for those that do.

                • We have an excellent local bakery here (0 / 0)

                  but their food does not have an ingredient label, and I know for a fact they bake dozens of peanut butter cookies daily. If I knew there was a peanut-vulnerable kid, I would not consider that safe.

                  All the other choices for anything baked would be mass market trucked in for Safeway, Wal-Mart, etc.

                  Fruit is a good option, when circumstances are right. But birthdays really do yearn for the traditional cake-type-item. If we had a gluten-intolerant kid, I would be happy to send fruit instead... but I don't think my daughter would be very happy if we, um, unilaterally disarmed in the Birthday Snack Department.

              • I don't think it is that much safer (0 / 0)

                One of the grocery stores in our area runs a disclaimer that there is a risk of cross contamination with products from their instore bakery, deli and other prepared food services.  I think that particular store is being proactive.  None of the other stores run that disclaimer but they share the same food preparation areas and also run the risk of cross contamination.  As a parent of a food allergic child, I find it extremely frightening that the allergen labeling laws allow companies to label on a voluntary basis.  Just because an allergen is not listed it doesn't mean a product is safe because not all companies are scrupulous about labeling the cross contamination risk.

                While homebaked goods would be difficult to police I think it would be easier to make a list of safe companies for use in baking.  For example, Hershey's has an excellent labeling policy and produces so much chocolate that they are able to have nut free dedicated facilities.  Nestles and many of the store brands cannot make this claim.  In the longrun, I think it is probably just safer for parents of the food allergic child to have a list of birthdays and celebrations in the class and to make their own arrangements that their child will not accidentally receive a contaminated product.

            • good policy (0 / 0)

              but I can't believe Jack is old enough for school already! Time flies so quickly...

              • Yeah, I can't believe it! (0 / 0)

                He starts the week of Sept 10th. Its only 1 day a week for 3 hours. And the great thing is they do an ease in period. The first week is only an hr and then they gradually increase the length of time every week. I'm not sure who will have a harder time on the first day: me or him! Lol! :)

  • Sounds like you are off to a great start (0 / 0)

    My son is also peanut allergic and will be starting pre K this year.  The program is a half day pre-K so there will be no meals served.  However, we will be dealing with birthday parties etc.  My plan is to try to volunteer and become a room mother if they still have them and be there to help out for the parties so that I am aware of any contamination issues.  Also I have a stash of safe cupcakes that I have baked myself in the freezer.

    Looking at your solutions though I am very impressed and also I confess a little intimidated.  I think that I am in a more enlightened area regarding food allergies although it's likely there will always be some eye rollers and people who just won't get it unless it happens in their family.  That said, you have taken on a lot of personal financial cost in dealing with this. I'm positive that my family would not be able to hire a nurse for the school or even provide a jar of Sunbutter at $4.50 a pop around here anyway for all of my son's classmates.  It makes me wonder what someone who doesn't have the option of paying for this or volunteering at the school would be able to do to ensure his or her child's safety.  I also wonder if this is a problem that goes unrecognized in poorer urban schools.  

    When I taught at the Catholic school with mostly middle class kids we teachers seemed to have an ever growing list of students with identified allergies and epis and procedures for dealing with it in the room.  I received no such information while I worked in an underprivileged urban after school program.  I find it hard to believe that none of the kids I worked with there had food allergies and always suspected that they faced a lot of risk in that environment.  I think like all aspects of health care there is an economic injustice attached to the food allergic child in that kind of setting.

  • It's mostly peace of mind (0 / 0)

    It's really not as much money as it sounds.  Even the nurse wasn't that expensive and there are free resources available for medical training through the school/childcare licensure board in most states.  As for the sunbutter, if you are buying for a school or in bulk you can order directly from the manufacturer at a reduced rate.  I am very grateful that we are able to afford such resources and that the school is willing to work with us.  The school staff are also very grateful for 1) the free training that counts toward their CE credit 2) help dealing with uninformed parents.  Plus we'll definitely be involved through volunteer activities just to be sure everything is going well. I also often wonder what happens in families where there is a lack of understanding or means.  For example, my step-sister would just take the school's word for it that they would watch out for it and she would just shrug it off if her child ended up in the ER.  She's not as neurotic as me but I just cannot have any peace of mind unless we've done everything we need to do to make sure he's safe.

    "We've GOT to make noises in greater amounts! So, open your mouth, lad! For every voice counts!"

    by progressiveinky on Tue Aug 14, 2007 at 01:34:42 PM PDT

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