Mother Talkers

Ransom Note Psychiatric Campaign Draws Criticism

Fri Dec 14, 2007 at 08:42:42 AM PDT

The New York University Child Study Center has begun the rollout across New York of a new advertising campaign on childhood psychiatric and developmental disorders, first in New York, and likely then across the rest of the country. Here's what they've come up with:

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I can't begin to describe how wrong this seems. The dehumanising idea that individuals with mental illness and other disorders are trapped within their issues, unable to communicate, locked up and held hostage by a disorder is one I think most of us thought had been left behind decades ago.

Other ads feature ADHD, Autism, OCD and Depression. Apart from dealing with these disorders in an entirely unhelpful, stereotypical and often inaccurate way, the image of the "stolen child" is one that mental health advocates have fought against for decades. It reduces individuals to their disorders, not taking in the personhood of those with mental illness or other disorders. The ad campaign is a huge step backwards.
It's also ignited a firestorm amongst advocacy groups, many of whom would normally be opposing each others' positions, uniting them in a way never before seen, condemning this campaign.

From the New York Times:

The Autistic Self Advocacy Network, a national grass-roots organization of children and adults, is circulating a petition asking the Child Study Center to end the campaign.

Kristina Chew, founder of the blog Autism Vox, which has a link to the petition, says that “the reaction has been mostly outrage from parents of special-needs children, autistic adults, teachers, disability rights advocates and mental health professionals.”

“It’s rallied them around one issue, and these aren’t people who normally agree about treating autism,” said Ms. Chew, who lives in Bernards Township, N.J., and has a 10-year-old son with autism.
...
Vicki Forman, an adjunct professor of creative writing at the University of Southern California whose 7-year-old son is blind and nonverbal, learned about the campaign on Ms. Chew’s blog and said it made her distraught. "The idea of an autistic person being held hostage is a very disturbing and backward image,” she said. “Rather than promote public awareness, this reinforces stereotypes — that there is something damaged about the autistic person, something in need of a repair."

In my view, this campaign is going to be terribly damaging to parents who are concerned about their children, raising an inaccurate and horrifying spectre of a disease taking away their children, while the truth is far more complex and often optimistic. I find it difficult to believe that it will do anything other than increase intolerance and fear of those with mental illness and who seem to be somehow different (as those with Asperger's and Autism often seem), and it seems an excessively negative, simplistic, and backward way to talk about these issues.
The following quote from the New York Daily News sums things up:

"There needs to be recognition that not all attention is good attention," said Ari Ne'eman, president of the Autistic Self Advocacy Network who suffers from Asperger's syndrome.

"The message that this campaign is sending, specifically that children with disabilities are shells, that somehow we have had our true selves stolen away or kidnapped ... is one that has a lot of terrible consequences."

Tags: Autism, Asperger's Syndrome, New York University Child Study Center, Ransom Notes, Mental Illness (all tags)

Permalink | 26 comments

  • Please let me know what you think. (0 / 0)

    Is the shock value of these ads worth it to bring childhood psychiatric problems into the light, or does this campaign just take us back a step? I'm not a parent, but I do have Asperger's Syndrome, and I found the above ad incredibly offensive.

    Cross posted at Street Prophets.

    "You're never more alone than when you're alone in a crowd."

    by Expat Briton on Fri Dec 14, 2007 at 08:44:12 AM PDT

    • A couple of extra links (0 / 0)

      First, to NYU's full page for the ad campaign, featuring all of the adverts in the campaign. Secondly, to the Autism Self Advocacy Network's open letter to NYU asking them to withdraw the campaign. You can also add your name to the list of signatories. It's a good letter, not too condemnatory, here's a short part to give you an idea of the tone:

      In the press release announcing this campaign, the Center gave as one of its goals "eliminating the stigma of being or having a child with a psychiatric disorder". We are in full agreement with the goal of eliminating stigma against people with disabilities and their families. Yet, this campaign serves to increase that stigma rather than lessen it. We hope that you will heed our concerns and those of many other people with disabilities, family members, professionals, and countless others and end the "Ransom Notes" advertising campaign.

      "You're never more alone than when you're alone in a crowd."

      by Expat Briton on Fri Dec 14, 2007 at 09:31:14 AM PDT

      [ Parent ]

    • I have two children, both with autism (0 / 0)

      and it does feel very much like they have been stolen.  Not literally, of course,  but not a day goes by when I don't imagine what could have been if they were not stricken by this horrible epidemic.

      Everything that most mothers take for granted is forever beyond my reach.  My children will never tell me what they want for Christmas.  They will never draw a picture of me in school.  They will never have friends or slumber parties.  They will never get married, have children, or leave home.

      It's not just my children's lives that have been stolen, but the lives of everyone in our family.  Our futures are determined by this one horrible fate: autism.

      I agree that there is something ugly and repugnant about this campaign, but if it does anything to educate people about the pain that millions of mothers are now suffering, if it gets help for our children, I'll sell my very soul to it.

  • I'm trying to come up with (0 / 0)

    some good interpretation of the ad, and I just can't.  I can see something like it being a teeny, tiny bit more effective applied to something like paranoid schizophrenia, but...no.  No!  Awareness is good, definitely.  This is just scare tactics.

  • Yuck, yuck, yuck (0 / 0)

    I come down on the side of "takes us back a step." Offensive and I don't think helpful. There's got to be a better way to say "if this is your child, here's where you can get information and/or help."

  • Asperger.... (0 / 0)

    Wow.  Talk about extreme. My kid is on the lower end of the spectrum, but this seems really over the top.

    They're obviously going for the shock value but if you are aiming for people who might not realize their child has an issue to address, this won't help them.  This might shake up a few who are in denial, but the ones who don't even realize that their child needs help won't have a clue what it even means.

    • I agree with it being inneffective (0 / 0)

      It seems to me that the first reaction of someone who doesn't recognize their child or themselves as being in such an extreme situation will be that they don't need help.  I know I was in that situation.
      And it just seems threatening.  If a parent, guardian, teacher, is convinced the situation is that extreme, they may go to extremes to force treatment on kids, taking away the existing coping strategies, and leading kids to hide their problems at all costs.  I know that one from experience, too.

    • I've lurked for a while, (0 / 0)

      so I've read your diaries and comments about Miles. He's lucky to have such an advocate as his mom.

      I'm not even sure it would shake up those in denial - in some ways, the campaign is so terrifying that it might push them farther into pretending there's nothing "wrong." But really, what concerns me the most is what it'll do to the perception of the public who don't deal with autists etc. on a regular basis.

      "You're never more alone than when you're alone in a crowd."

      by Expat Briton on Fri Dec 14, 2007 at 09:53:15 AM PDT

      [ Parent ]

      • I agree (0 / 0)

        I'm not even sure it would shake up those in denial - in some ways, the campaign is so terrifying that it might push them farther into pretending there's nothing "wrong."

        I agree.  That's the problem with scare tactics.  If you make something seem so scary, like this ad does, it  just makes denial that much more appealing.

        And of course, it adds further stigma to autism in general.

      • Thanks (0 / 0)

        I guess what bothers me viscerally about this ad is how it flattens the child out into a single dimension.  There are so many amazing parts of Miles that are also probably part and parcel of the complex melange of his intellect, personality and behaviors that add up to this diagnosis.  To focus on this single aspect of an Aspie seems insulting and dishonest.

  • Cousin (0 / 0)

    I have a cousin that most likely has a form of Asperger's Syndrome. Of course, no one is sure because his parents, my Aunt and Uncle, don't seem to be interested in getting him diagnosed, tested, or treated. I can't say I'm all for this campaign, but the older he gets, the more he seems to slip and it is very frustrating to watch. Maybe it isn't even Asperger's... we have no idea. So while I'm all for the awareness, and would even say maybe some denial-parents need to be jolted into it, it seems a little harsh.

    • What (0 / 0)

      What does his primary care doctor/teachers say?  Why do you think no one outside of the parents has addressed it yet?  Or have they?

      • Who knows? (0 / 0)

        They live in the same town, and my mother is close to the school district and some teachers in the neighborhood (his 3rd grade teacher was the mom of a kid I went to school with, small town feel) and they were under the impression that his mom and dad aren't all that interested in helping things- he's in special education classes.

        If there is a diagnoses, they haven't shared it with the family which is of course their prerogative. He is difficult to relate to and the feeling you get from the family is that they have no care to address anything at all.

        • maybe he's in special ed (0 / 0)

          because of his condition?  Sorry to hear that he's not thriving :(

          Sometimes many people have spoken to the parents and the parents have even taken measures, but they avoid letting others know what's going on due to stigma.  I was working with such a mother this week who was a complete pressure cooker because her husband doesn't help at all and she won't tell her friends what's going on.  She was seriously about to blow with all she is dealing with alone.

  • Exorcism (0 / 0)

    that's what it makes me think of.  The idea that if you could just drive out the eeeevil spirits, you'd get a lovely, god-fearin' child.  Treating a psychiatric or neurologic condition means treating a PERSON.  Gah!

  • That is a horrible ad (0 / 0)

    and if there's one thing we don't need in parenting-land, it's more blind fear of Asperger's and autism.

    Frankly, it just leaves me shaking.

  • What they all said! (0 / 0)

    So many good comments here about how disturbing and unhelpful this add campaign is.

    I'm not even sure it would shake up those in denial - in some ways, the campaign is so terrifying that it might push them farther into pretending there's nothing "wrong." But really, what concerns me the most is what it'll do to the perception of the public who don't deal with autists etc. on a regular basis.
    (Expat Briton )

    Exactly! Just what we  need, [/sarcasm] more fear mongering. Not real education, not real information but reactionary fear mongering.

    Tying into that ...  

    when you go to the site, it has actual information, right next to the crazy scare tactics in the ads.  Do they really think the one connects to the other?
    (lonespark)

    Oh yeah. People who are emotionally charged think so clearly. (ok I guess I wasn't done with the sarcasm.)

    This is what really hit me personally.

    We have your son. We are destroying his ability for social interaction and driving him into a life of complete isolation. It's up to you now.
     --Asperger Syndrome

    Many of you know that I have a 16 year old son with Asperger's Syndrome. He is very open and outspoken about it. He's constantly an advocate for himself. He recently gave a presentation on Asperger's and his experiences with it to his English class. The have gone from openly hostile to welcoming, helpful, and accepting. (YAY!)

    He struggles with social interaction, but his ability is not "destroyed". He is not destined to a life of "complete isolation". I can't imagine his reaction to a campaign like this after all of the work that he's done to educate his friends, classmates and even some of his teachers.

    I'm so angry about this I could just .... I don't know I'm too angry to figure it out.

    Sign the petition!   (Please)

  • Ransom note (0 / 0)

    A few years ago, an Autism Group (I think the Autism Coalition, but I'm not sure) did a similar add in the form of a ransom note.  When I was hired, it was hanging in our office.  One of my first "executive" decisions was to get the stupid thing taken down!  Our families are struggling with enough, without their child's disability being equated with being kidnapped.

    Thank you for posting this!

  • how horrible (0 / 0)

    as I've shared in the past, both of my parents work with the severely mentally ill (mom's a rehab councilor and dad's a social worker), so these are issues I've been active on since literally in utero - my first protest march was in the early 80s to counter some sort of massive funding cuts for mental health services. I was, like, 3, so I can't exactly remember.

    The thing that bothers me the most is what Ne'eman points out - that is, there is the person and there is the disability and they're two distinct beings. Mental disorders are not something that can be driven out or even "cured" as such - they can be managed, the people who have them should be properly supported and in no way should we assume that people cannot achieve and thrive because they have a disorder, but it must be treated.

    I also am extremely wary of the message that mental disorders are reduced to crimes/criminals - kidnapping/ransom, etc. Kids are literal; what's to say some smart alek doesn't read this message and interalise the idea that the classmate with Asberger's, bulemia, depression, isn't some sort of criminal?

    Totally regressive campaign, IMHO.

  • Parents magazine (0 / 0)

    I was just flipping through a magazine last night and saw a similar ad for ADD. Ugh. I feel for people who already have the diagnosis and for those who may be on the road to one. Those ads do nothing to help them on their journey.

  • wrong on so many levels (0 / 0)

    As others have pointed out, Asperger's / ADHD / depression is not who you ARE.  It's something that is a part of you that you learn to live with.  There are even (gasp!) advantages to many "disorders."  

    And it's disingenuous to imply that your child can be "fixed."  It's not like you go to a clinic and no longer have these conditions.  You can learn ways to cope, and maybe take meds to soften the harder parts of, say, OCD, to make your life easier.  But wherever you go, there you are.  Just like all of us.

  • I think is a great ad--you're not the target (0 / 0)

    I don't think it's aimed at parents who are educated and knowledgable about their children's conditions.  I think it's aimed at parents who aren't, and who must feel like their children are being pulled away from them.  

    And acknowledging that fear, educating them that that's not the only option, and showing those people a way to get information is an admirable goal and fine way to do it.

    Good for NYU.  Stop criticizing from a position of relative strength.

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