Mother Talkers

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  • Show some COMPASSION (0 / 0)

    From what I understand, there are potential correlations between Alzheimer’s and Niemann Pick Type C – like dementia, neurofibrillary tangles, glucose problems in the brain, neuroinflammation, etc. While the underlying biology may not be the same (or maybe it could be since they don’t know what causes Alzheimer’s), the result is the same with many of the symptoms.  People lose their mind and their skills and they die. These girls are being treated with a compound that was developed by UCLA for people who suffer from Alzheimer’s.  

    I know the Hempel family personally and these are GOOD people that are trying to save their daughters and other NPC children. I can't believe that someone on this message board would criticize a family who is losing two children (their only children)to this horrible disease. Come on...show some compassion. How could you understand something like this happening to you?  Some people believe in a higher power and that things happen for a reason, some people don’t. It's hard to wrap your head around. Our community has pulled together and connected with this family.  The Gala event this Saturday is sold out with over 850 people attending.  Plus, there are wonderful people from all around the Country knitting CureCaps, holding events etc. I'm truly very sorry about your son's situation and I wish you both well.

    by reagansmum on Thu May 08, 2008 at 12:56:30 PM PDT

    • I'm glad the Hempel family (0 / 0)

      has such wonderful support.  I don't begrudge them whatever belief system it is that helps them make sense out of this tragedy.  However, I think we can afford to  have compassion for all who are dealing with life altering/life threatening diseases within their families.  We all have our own unique responses and ways of coping.  People are allowed to have different perspectives.  Please understand that many times, when going through a difficult health crisis, many can feel as if those saying "its God's will" or something similar can feel as if this is awfully close to having judgment passed.  If the Hempels can deal with this tragedy by understanding it that way, that's fine.  However, others do have the right to find this unacceptable.

      by tjb22 on Thu May 08, 2008 at 01:33:19 PM PDT

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    • I think (0 / 0)

      lyn was just saying how it felt to read that when she's in a similar situation.  

      by Erin on Thu May 08, 2008 at 05:35:53 PM PDT

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    • I have every sympathy (0 / 0)

      for the Hempel Family. But just as the Hempels are entitled to express their feelings, Lyn is just as entitled to express hers. I don't think it makes Lyn any less compassionate towards your friends to say what she did. I imagine you must be heartsore for your friends and their children and feeling very lioness in wanting to protect them, but I am sure Lyn did not have a mean intention in writing what she did.

      by Rachel on Thu May 08, 2008 at 08:25:12 PM PDT

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