NPC has no relationship whatsoever to alzheimers, it is an inborn error of metabolism that allows accumulation of lipids to levels that are eventually toxic to the cells.  Each of these diseases individually is rare, but there are more than 40 lysosomal storage disorders.  All are genetic, none has a cure.  A few, including my son's condition, have treatments that may or may not improve the prognosis.

Knowing what they face, I clicked over to their website.  I felt the blood drain from my face with one phrase - I was so upset I had to walk away to catch my breath:

At first, we did not understand why God chose for us to be born with NPC

I would never deny anyone their personal religious consolation.  But they are not the only ones suffering from this, and they should not publicly slap the rest of us in the face with their justification for my child's suffering, not if they want to reach out to the rest of the community.