you show some compassion... For another mother, in a similar situation, grieving for her own child.  

I can't believe that someone on this message board would criticize a family who is losing two children (their only children)to this horrible disease. Come on...show some compassion. How could you understand something like this happening to you?  

I'm sorry, but I can't believe someone who has never before participated in this community would come here and criticize a woman who is in great fear of losing her own child to a similar disorder.  You ask how she could understand something like this happening to her??? Because it is.

Lyn, your family continues to be in my thoughts...