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how are things with the family?
by Rachel on Tue Apr 29, 2008 at 05:09:00 PM PDT
[ Parent ]
We're home and settling in. Little guy's vision seems to be going back to normal which is nice. He's also taking a bottle some of the time so less through the feeding tube is necessary. No breastfeeding yet so I'll just see how long I can manage to exclusively pump without losing my mind.
We had followup with the cardiologist and things look basically good. The mitral regurgitation is a wild card because it can change (for better or worse) as he grows. It's kind of hard for me to pace myself as far as worry is concerned. Patience has never been my strong suit, nor has living just in the moment. I'm a planner!
One of the hardest things is carving out some time for me. We have lots of help -- friends, family, nannies -- but it's still tough. I work 32 hrs/week from home, my husband does 40+ and then we have three kids under 3.5 years! And little guy requires a fair bit of work right now - feeding tube, meds, working on bottlefeeding... And he has reflux so he's messy ;-)
All in all though -- good.
by Anu on Tue Apr 29, 2008 at 07:39:20 PM PDT
you are busy! I remember having four under not quite four, but I wasn't working outside the home! You are truly amazing.
And sometimes "help" can almost seem like having more people underfoot.
Just remember to take care of yourself.
by tjb22 on Tue Apr 29, 2008 at 07:57:07 PM PDT
Growing up my parents weren't always practical about money so I tend to worry about it unnecessarily. My work pays for our absolutely fantastic childcare providers and it gives me something to think about other than our little guy's cardiac stuff.
As for being amazing, I'll take the compliment :-) I do feel out of balance though. Our kids look fantastic but I look like I've gone through the wringer -- I've lost weight and I'm not getting enough sun. I'm really looking forward to nice weather so we can pop outside more easily.
You're so right about "help". While I adore them, my in-laws often feel that way to me. I've learned to just take little guy downstairs and leave the older kids to play with our helpers. They still find me but not so quickly ;-)
by Anu on Tue Apr 29, 2008 at 11:26:38 PM PDT
congratulations on being home, and I'm so glad to hear that Little Guy is fighting strong. Good news on the vision and on the bottlefeeding, and I sure hope he can go back to the breast soon. I'm sure you both would crave the close contact!
I hear you on the patience/living in the moment thing; I'm a planner too. If I can't at least sketch out a few scenarios, I don't deal well.
So glad for the update and I'll echo tjb and say I hope you can take time for yourself. You deserve it and need it!
by Rachel on Tue Apr 29, 2008 at 09:24:26 PM PDT
It's hard because I don't really think it helps me here at all. Right now I just need to keep on taking him to our excellent cardiologist. When we were in the hospital my 'one step ahead' way of looking at things definitely helped get quicker diagnoses, which was good.
The recovery with his vision, as evidenced by gaze preference and tracking, is really amazing. It speaks to how plastic infant brains are!
by Anu on Tue Apr 29, 2008 at 11:28:55 PM PDT
and it sounds to me as if your little man is definitely a fighter. I'm so glad you've got a cardiologist that you feel so positively about.
BTW, I'm with you on in-law strategies. I find that if I hang around when my PILs are taking care of Jess, I just get totally agitated!
by Rachel on Wed Apr 30, 2008 at 12:03:09 AM PDT
I'm so glad you're home and the kids are thriving.
by mamacita on Sat May 03, 2008 at 04:13:41 PM PDT
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