Mother Talkers

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  • I guess... (0 / 0)

    what I was looking for was someone who looked more like Miles:  A highly verbal and emotionally intense child as opposed to the more typical and expected lack of affect and echolalia.

    And there are things, like his arm flapping, that he really only does at home or at my parents' house.  He knows it's not cool to do elsewhere.  So, the psych has never seen it.

    Miles and His Favorites: The World As Seen By an Eight Year Old

    by Hillary on Wed Oct 17, 2007 at 10:48:42 AM PDT

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    • I wonder (0 / 0)

      if these videos are filled with younger children because that's who the project is hoping to help identify?

      Has anyone recommended any services for Miles?  I would be curious to know what kind(s) of therapy he is doing, what the goals are, and how it's going.  Some children with Asperger's are asked to learn scripts for social interactions, because chit-chat doesn't always come naturally.  It's similar to having learned to only flap in "safe" environments -- "Here's what I do when I'm at school" or "Here's what I say when someone asks how my day is going."  Some children learn to grade their emotional responses, or to save up their strong reactions for a more appropriate place/time.  Sometimes that happens in OT.  Anyway, just curious.

      Mama to one son, born 12/93.

      by mamacita on Wed Oct 17, 2007 at 11:37:52 AM PDT

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      • still in diagnosis mode (0 / 0)

        We're still in diagnosis mode.  Within a week or so, I think we'll have that settled.  The psychologist we've engaged seems interested in getting him into speech therapy and OT. She has some professionals she likes and also believes she can write up the report so that he can get ACCESS, which is a state program that would give him 50 speech therapy sessions a year for free.

        He had an extremely bumpy start to this year, but last week and this week, he seems to be doing better.  I'm not sure why, perhaps it is just that he does settle in after a while but it takes him longer and his emotional outbursts are so much more dramatic than average kids.

        If I had to guess I'd say he's not very high up on the Asperger's scale.  I am hopeful with some practical therapies, he'll find a way to work within the world and make the most of his gifts.

        Miles and His Favorites: The World As Seen By an Eight Year Old

        by Hillary on Wed Oct 17, 2007 at 05:06:07 PM PDT

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        • he has so many strengths (0 / 0)

          from what you've described.  I imagine he'll make a fantastic adult.  Sometimes school can be hard, as it requires a lot of conforming and not always for easily discernible reasons.  And then with all the options of adulthood, life gets easier.  I'm glad to hear things are getting better.  

          Something you may want to keep in mind as you go through the diagnostic process is that if three different professionals saw him, you might get three different diagnoses.  That's one reason I like to focus on needs rather than labels.

          Good luck getting to the home stretch with all this!

          Mama to one son, born 12/93.

          by mamacita on Wed Oct 17, 2007 at 05:36:47 PM PDT

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